Invasive Home Ventilation in Denmark

Recruiting Observational Study
Neuromuscular Diseases (NMD) ALS (Amyotrophic Lateral Sclerosis) Spinal Cord Injuries (SCI) Duchenne Muscular Dystrophy (DMD) SMA - Spinal Muscular Atrophy MSA - Multiple System Atrophy Tracheostomized Patients Tracheostomy
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
450 (estimated)
Sponsor
Rigshospitalet, Denmark · Other
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About This Trial

The aim of this study is to describe national trends over the past 10 years in patients receiving invasive home mechanical ventilation (HMV) in Denmark. This includes indications for invasive HMV, diagnostic groups, and one-year mortality.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Patients are included if they have or have had a respiratory certified personale care assistent during the period 2016-2025. Exclusion Criteria: * Not tracheostomized * Tracheostomized but on spontaneous breathing throughout 1 January 2016 - 31 December 2025 * Not discharged…
Contacts

Janne B Stokholm, M.D.

+45 38632376

janne.boegh.stokholm.01@regionh.dk

CONTACT

Anne-Katrine Staehr-Rye

+45 24455276

anne.kathrine.staehr.rye@regionh.dk

CONTACT