NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors
Recruiting
Observational Study
Very Rare Tumors
Very Rare Cancers
Other Solid Tumors
Solid Tumor
Pediatric Rare Tumors
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 1 Month – 120
- Sex
- Any
- Study type
- Observational
- Participants needed
- 4,000 (estimated)
- Sponsor
- National Cancer Institute (NCI) · NIH
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About This Trial
Background:
All childhood cancers are rare, but some are called very rare. Very rare cancers are diagnosed in 2 or fewer out of 1 million people each year. Researchers want to gather data so they can learn more about these very rare cancers. They hope to use the data to develop future treatments.
Objective:
To gather data for a registry of very rare cancers found in children, teens, and young a…
Trial Locations
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Eligibility Criteria
* INCLUSION CRITERIA:
* History of newly diagnosed (within 1 year of diagnosis) very rare solid tumor (defined as an estimated 2 incident cases per million per year).
* Age \>= 1 month and \<= 39 years at the time of diagnosis.
* Participants must have established care with a local treating physicia…
Contacts