Implementation of an Accessible Healthcare Model (ACHD STRONG): Comparing Nurse and Physician Lead Healthcare Transition Education in a RE-AIM Framework
Recruiting
N/A
Interventional Study
Congenital Heart Disease
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 12 – 26
- Sex
- Any
- Study type
- Interventional
- Purpose
- Health Services Research
- Participants needed
- 450 (estimated)
- Sponsor
- University of Wisconsin, Madison · Other
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About This Trial
The study includes patients with congenital heart disease (CHD), as well as their support persons and their providers, who are preparing to make the transition from pediatric to adult care for their CHD. The purpose of this study is to improve the tools available to help find doctors as patients enter adulthood. 200 people with CHD and support people will be enrolled.
Trial Locations
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Eligibility Criteria
Inclusion Criteria (Patient Participants):
* Diagnosed CHD patients between the ages of 12-26 will be eligible
* Able to provide assent when seen by a pediatric or adult congenital cardiologist provider.
* A subset of patients will self-identify as having a disability, and or, be identified with di…
Contacts