Education for Transitioning to Adult Care in CHD

Implementation of an Accessible Healthcare Model (ACHD STRONG): Comparing Nurse and Physician Lead Healthcare Transition Education in a RE-AIM Framework

Recruiting N/A Interventional Study
Congenital Heart Disease
No Placebo Group Every participant receives an active treatment — no one gets a placebo.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Age
12 – 26
Sex
Any
Study type
Interventional
Purpose
Health Services Research
Participants needed
450 (estimated)
Sponsor
University of Wisconsin, Madison · Other
Who this trial is looking for

This trial is looking for young people aged 12 to 26 with congenital heart disease who are getting ready to move from pediatric to adult healthcare. Participants will work with their support people and healthcare providers to improve tools for finding adult doctors.

Are You a Good Fit for This Trial?

You may be able to join if

  • I have congenital heart disease.
  • I am between 12 and 26 years old.
  • I can understand information in English or Spanish.
  • I can agree to participate when I meet with a doctor.
  • I may identify as having a disability or it may be noted in my records.
  • If I am under 18, my legal guardian can provide consent in English or Spanish.

You may not be able to join if

  • My doctor does not want me to participate.

Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.

Think this trial could be right for you?

Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.

Check Your Eligibility
About This Trial

The study includes patients with congenital heart disease (CHD), as well as their support persons and their providers, who are preparing to make the transition from pediatric to adult care for their CHD. The purpose of this study is to improve the tools available to help find doctors as patients enter adulthood. 200 people with CHD and support people will be enrolled.

Trial Locations
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Eligibility Criteria
Inclusion Criteria (Patient Participants): * Diagnosed CHD patients between the ages of 12-26 will be eligible * Able to provide assent when seen by a pediatric or adult congenital cardiologist provider. * A subset of patients will self-identify as having a disability, and or, be identified with di…
Contacts

Catherine Allen, MD

(608) 263-9783

ccallen@pediatrics.wisc.edu

CONTACT