I-TOPS With Patients With Genetic Syndrome SYN-TOPS
Recruiting
N/A
Interventional Study
Genetic Syndrome
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 11 – 39
- Sex
- Any
- Study type
- Interventional
- Purpose
- Treatment
- Participants needed
- 42 (estimated)
- Sponsor
- IRCCS Eugenio Medea · Other
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About This Trial
Genetic syndromes involving the central nervous system are often associated with cognitive, behavioral and communication difficulties that negatively impact adaptive functioning and quality of life. Despite advances in digital health, there remains a lack of evidence-based interventions targeting executive functions and psychosocial outcomes in this population.
This multicenter study aims to eval…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis of genetic syndrome
* Age: 11 to 39 years and 11 months
* Ownership of a personal computer and access to the Internet at home;
* Basic computer literacy of the patient and/or family, sufficient to manage email, browse the Internet, use websites and conduct video-call…
Contacts