Auditory EEG and Behavioral Assessments in Individuals With Rett Syndrome

Recruiting Observational Study
Rett Syndrome
No Placebo Group Every participant receives an active treatment — no one gets a placebo. Healthy Volunteers Welcome You do not need to have the condition being studied to take part. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
2 and older
Sex
Any
Study type
Observational
Participants needed
60 (estimated)
Sponsor
University of Rochester · Other
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About This Trial
This observational research study is designed to learn more about how the brain processes sound in individuals with Rett syndrome. Participants will complete a noninvasive electroencephalogram (EEG) recording while listening to simple sounds through headphones. In addition, parents or caregivers will complete questionnaires and an interview about the participant's symptoms, communication abilities…
Trial Locations
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Eligibility Criteria
Rett Syndrome Participants: Inclusion Criteria: * Have a clinical diagnosis of classic Rett syndrome * Have a pathogenic MECP2 genetic variant confirmed via genetic testing * Are past the clinical regression stage * Are within the eligible age range for the study (2 years or older) * Are able to t…
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