A Study of the Effectiveness, Safety and the Long-term Outcomes of Participants With Progressive Familial Intrahepatic Cholestasis (PFIC) Who Take Odevixibat (Bylvay) in China

Recruiting Observational Study
Progressive Familial Intrahepatic Cholestasis
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
6 Months and older
Sex
Any
Study type
Observational
Participants needed
20 (estimated)
Sponsor
Ipsen · Industry
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About This Trial
This registry-based study will collect information from people with Progressive Familial Intrahepatic Cholestasis (PFIC) who take odevixibat (Bylvay) as part of routine clinical care in China. PFIC is a rare genetic liver disease that affects bile secretion and can cause bile acids to build up in the liver, which may lead to symptoms such as severe itching (pruritus). Odevixibat was first allowe…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosed with PFIC (all types) who have been prescribed odevixibat (independently of the decision to enroll the participant in this registry) by their treating physician * On (or starting) active odevixibat treatment (participants can remain in the registry during odevixibat …
Contacts

Ipsen Clinical Study Enquiries

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Clinical.trials@ipsen.com

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