Adult Bladder and Quality of Life Evaluation in Spina Bifida
Recruiting
Observational Study
Spina Bifida or Spinal Dysraphism
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 13 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 300 (estimated)
- Sponsor
- Blayne Welk · Other
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About This Trial
Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Resea…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Diagnosis of SB
2. Age ≥13 years of age
3. Able to effectively communicate in English or Spanish
4. Willing to provide informed consent for participation and answer a set of questionnaires
Exclusion Criteria:
1. Reconstructive surgery or urinary diversion in the last 3 mont…
Contacts