Adult Bladder and Quality of Life Evaluation in Spina Bifida

Recruiting Observational Study
Spina Bifida or Spinal Dysraphism
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
13 and older
Sex
Any
Study type
Observational
Participants needed
300 (estimated)
Sponsor
Blayne Welk · Other
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About This Trial
Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Resea…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: 1. Diagnosis of SB 2. Age ≥13 years of age 3. Able to effectively communicate in English or Spanish 4. Willing to provide informed consent for participation and answer a set of questionnaires Exclusion Criteria: 1. Reconstructive surgery or urinary diversion in the last 3 mont…
Contacts

Mary McKibbon, BNSc

519-646-6367

mary.mckibbon@sjhc.london.on.ca

CONTACT