Hungarian National Systemic Amyloidosis Registry

Recruiting Observational Study
Systemic Amyloidosis ATTR Amyloidosis AL Amyloidosis Amyloid Cardiomyopathy
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
300 (estimated)
Sponsor
Semmelweis University · Other
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About This Trial

This registry is an observational, multicenter, retrospective and prospective, non-pharmacological study designed to collect and analyze data from patients with systemic amyloidosis treated in inpatient and outpatient cardiology, hematology, nephrology, and neurology departments across Hungary. The registry was established in 2025.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosis of systemic amyloidosis * Patients aged ≥18 years at the time of enrollment * Signed informed consent form by the patient * Treating physician's consent * Availability of accessible medical history Exclusion Criteria: * Lack of informed consent in the prospective s…
Contacts

Zoltan Pozsonyi, MD, PhD

+36208250944

pozsonyi.zoltan@semmelweis.hu

CONTACT

Daniella Nagy, MD

+36206701243

nagydana27@gmail.com

CONTACT