Research on Neurodegenerative Diseases and Blood Samples

Biofluid Research on Age-Related or Inherited Neurodegeneration

Recruiting Observational Study
Frontotemporal Degeneration (FTD) ALS (Amyotrophic Lateral Sclerosis) Primary Progressive Aphasia (PPA) Familial Frontotemporal Lobar Degeneration (fFTLD) Fronto-temporal Lobar Dementia Dementia With Lewy Bodies (DLB) Cortical Basal Syndrome (CBS) Alzheimer's Disease (AD) Progressive Supranuclear Palsy(PSP) Parkinson's Disease (PD) Parkinson's Disease Dementia (PDD) Limbic-predominant Age-related TDP-43 Encephalopathy (LATE) Posterior Cortical Atrophy (PCA) Primary Lateral Sclerosis (PLS) Primary Muscular Atrophy (PMA)
No Placebo Group Every participant receives an active treatment — no one gets a placebo. Healthy Volunteers Welcome You do not need to have the condition being studied to take part. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
1,000 (estimated)
Sponsor
University of Pennsylvania · Other
Who this trial is looking for

This trial is looking for people diagnosed with neurodegenerative diseases like Alzheimer's or Parkinson's, as well as their family members. Participants will provide blood samples and information about their health and family history.

Are You a Good Fit for This Trial?

You may be able to join if

  • I have been diagnosed with a neurodegenerative disease.
  • I am a family member of someone diagnosed with a neurodegenerative disease.
  • I do not have any known neurological disease and can provide control data.

You may not be able to join if

  • I am under the age of 18.
  • I have a condition that could interfere with study findings or my participation.

Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.

Think this trial could be right for you?

Answer a few quick questions to see if you may meet the eligibility requirements.

Check Your Eligibility
About This Trial
The aim of this study is to contribute to and continue to sustain a repository of blood samples, nucleic acid (DNA and/or RNA) samples, family history information, and other demographic information from individuals with age-related neurodegenerative conditions, or their family members who may or may not be at risk for similar conditions. This study will continue to further expand research into the…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: 1. People with a clinical diagnosis of a neurodegenerative disease including, but not limited to Alzheimer's disease (AD), Parkinson's disease (PD), Parkinson's disease dementia (PDD), dementia with Lewy bodies (DLB), frontotemporal dementia (FTD), amyotrophic lateral sclerosis …
Contacts

Cara Joyce, MPH

267-271-0740

cara.joyce@pennmedicine.upenn.edu

CONTACT

Emily Xie

16109553114

emily.xie@pennmedicine.upenn.edu

CONTACT