Mayo AVC Registry and Biobank
Recruiting
Observational Study
Arrhythmogenic Right Ventricular Cardiomyopathy
Cardiomyopathies
Heart Diseases
Cardiovascular Diseases
Sudden Cardiac Arrest
Sudden Cardiac Death
Arrhythmogenic Right Ventricular Dysplasia
Arrhythmogenic Ventricular Cardiomyopathy
Familial Dilated Cardiomyopathy
Cardiovascular Abnormalities
Sarcoidosis
Cardiac Arrhythmia
Cardiac Sarcoidosis
Myocarditis
Inflammatory Cardiomyopathy
Ventricular Tachycardia
Right Ventricular Outflow Tract Ventricular Tachycardia
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Mayo Clinic · Other
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Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
Arrhythmogenic ventricular cardiomyopathy (AVC) is a genetic condition which affects the heart and can lead to heart failure and rhythm problems, of which, sudden cardiac arrest or death is the most tragic and dangerous. Diagnosis and screening of blood-relatives is very difficult as the disease process can be subtle, but sufficient enough, so that the first event is sudden death.
The Mayo Clinic…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Patients with a diagnosis of a non-MI SCA who survived
* Patients with a non-MI SCD
* Patient with a SCA associated with seizures, epilepsy, syncope, drowning and near-drowning, where a cardiomyopathy is suspected
* Family member of a patient diagnosed with primary cardiomyopa…
Contacts