Mayo AVC Registry and Biobank for Heart Conditions
Mayo AVC Registry and Biobank
Recruiting
Observational Study
Arrhythmogenic Right Ventricular Cardiomyopathy
Cardiomyopathies
Heart Diseases
Cardiovascular Diseases
Sudden Cardiac Arrest
Sudden Cardiac Death
Arrhythmogenic Right Ventricular Dysplasia
Arrhythmogenic Ventricular Cardiomyopathy
Familial Dilated Cardiomyopathy
Cardiovascular Abnormalities
Sarcoidosis
Cardiac Arrhythmia
Cardiac Sarcoidosis
Myocarditis
Inflammatory Cardiomyopathy
Ventricular Tachycardia
Right Ventricular Outflow Tract Ventricular Tachycardia
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Mayo Clinic · Other
Who this trial is looking for
This trial is looking for people with heart conditions related to arrhythmogenic ventricular cardiomyopathy (AVC) or sudden cardiac events. Participants will provide medical information and samples to help researchers understand the genetic aspects of AVC.
Are You a Good Fit for This Trial?
You may be able to join if
- I have survived sudden cardiac arrest not caused by a heart attack.
- I have a history of sudden cardiac death that is not due to a heart attack.
- I have experienced sudden cardiac arrest linked to seizures or fainting.
- I am a family member of someone diagnosed with primary cardiomyopathy.
You may not be able to join if
- I have a known clear cause of sudden cardiac arrest or death, like a heart attack.
- I have significant coronary artery disease that explains my heart issues.
- I do not want to provide written consent.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
Arrhythmogenic ventricular cardiomyopathy (AVC) is a genetic condition which affects the heart and can lead to heart failure and rhythm problems, of which, sudden cardiac arrest or death is the most tragic and dangerous. Diagnosis and screening of blood-relatives is very difficult as the disease process can be subtle, but sufficient enough, so that the first event is sudden death.
The Mayo Clinic…
Trial Locations
Loading…
Loading trial locations…
Eligibility Criteria
Inclusion Criteria:
* Patients with a diagnosis of a non-MI SCA who survived
* Patients with a non-MI SCD
* Patient with a SCA associated with seizures, epilepsy, syncope, drowning and near-drowning, where a cardiomyopathy is suspected
* Family member of a patient diagnosed with primary cardiomyopa…
Contacts