The Co-Op @ HeartWorks for Congenital Heart Disease
The Co-Op @ HeartWorks
Recruiting
Observational Study
Congenital Heart Disease
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 500 (estimated)
- Sponsor
- HeartWorks, Inc. · Other
Who this trial is looking for
This trial is looking for adults, caregivers of minors, or family members of those who have been diagnosed with congenital heart defects. Participants will help create a database to improve future treatments and studies for congenital heart disease.
Are You a Good Fit for This Trial?
You may be able to join if
- I am an adult with congenital heart defects/disease
- I am a caregiver of a minor with congenital heart defect/disease
- I am an authorized family member of someone who has passed away with congenital heart defect/disease
You may not be able to join if
- I do not have congenital heart defect/disease
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Adult with a congenital heart defects/disease
* Caregiver of a minor with a congenital heart defect/disease
* Authorized family member of a now deceased person with congenital heart defect/disease
Exclusion Criteria:
\- Not having a congenital heart defect/disease
Contacts