Heart Disease Study for Adults with Congenital Heart Issues
Heart Institute Biobank & Registry for Adult Congenital Heart Disease and Related Disorders
Recruiting
Observational Study
Adult Congenital Heart Disease
Pulmonary Hypertension
Connective Tissue Disease
Other Cardiovascular Conditions
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 16 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 5,000 (estimated)
- Sponsor
- Children's Hospital Medical Center, Cincinnati · Other
Who this trial is looking for
This trial is looking for adults who have congenital heart disease or related health issues. Participants will help provide samples and information to support future health research.
Are You a Good Fit for This Trial?
You may be able to join if
- I am at least 16 years old and have congenital heart disease.
- I am at least 16 years old and have another type of heart disease.
- I am at least 16 years old and have pulmonary hypertension.
- I am at least 16 years old and have connective tissue disease.
- I am at least 16 years old and have a genetic syndrome.
- I am at least 16 years old and am a non-smoker without diabetes or serious heart issues.
- I am a family member or someone accompanying a patient.
- I volunteered to be part of this study.
You may not be able to join if
- I cannot give my consent or have a guardian do it for me.
- A healthcare provider says it is not safe for me to provide a sample.
- I was hospitalized for a non-pregnancy related reason in the last 30 days.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
A repository of biospecimens and detailed phenotypic information collected longitudinally from adults with congenital heart disease and related conditions, with an aim to facilitate future research on biologic mechanisms of underlying disease, compensation and deterioration; biologic correlates of patient experience and functional status; associations between clinical characteristics and various b…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Any person ≥ 16 years-old suspected of having or diagnosed with congenital heart disease (CHD), other cardiovascular disease (CVD), pulmonary hypertension, connective tissue disease, or genetic syndrome/diagnosis.
2. Additionally, a cohort (Control group A) of control subject…
Contacts